Throughout my working life I have been continually amazed by the families and carers I have come across. Their level of care and commitment to their spouse/child/friend/loved one is often awe inspiring. However I am also often extremely concerned for the wellbeing of the carers, their devotion to their sick or disabled relative often comes at the expense of taking care of themselves and I find myself advising that “you have to take care of yourself because if you get sick who will care for your husband/wife”.
The following tips are adapted from www.webmd.com/healthy-aging/ss/slideshow-avoid-caregiver-burnout. However, by talking to your health care providers they can also advise you on ways to reduce the burden, this maybe through equipment, manual handling training, or advice on local support.
Tip 1: Take Time for You
It’s easy to get burned out when caring for a loved one, whether it’s a special-needs child, a spouse with a chronic illness, or a frail older person. Taking time for yourself everyday — even just a few minutes — is one way to help you recharge. Try yoga before breakfast, slip out for a 20-minute walk, go to the movies, or pursue any hobby you love. Reducing your stress will make you a better caregiver.
Tip 2: Know Your Limits
You can’t provide good care if you feel overwhelmed and stressed out. Make a list of all the tasks you need to do in a week, including dressing and bathing a loved one, appointments, exercises, cooking, and household chores. Brainstorm which ones someone else might be able to do. Learn when to say no, and set boundaries so you can take care of your family — and yourself
Tip 3: Stick to a Routine
A daily routine can be a lifesaver. It can help you feel in control rather than stressed and lets your loved one know what to expect. The consistency of a daily routine is especially important for people with a brain injury or dementia, because it provides a sense of security and helps them maintain their abilities.
Tip 4: Ask for Help
Even a few hours “off duty” can help you recharge. Make a list of family, friends, or neighbours to call when you need a break. A private carer or adult day care center can give you a breather while your loved one enjoys some social activity. Your local council should be able to advise you on Aged services and Disabled services in your area.
Tip 5: Get Enough Sleep
Most caregivers who say their own health has gotten worse blame loss of sleep. Relaxation exercises, such as deep breathing, may help you at bedtime. If your loved one sleeps during the day but is awake much of the night, try to take naps. You may need to hire an aide or ask a friend or relative to stay with your loved one overnight so you can get a good night’s sleep.
Tip 6: Join a Support Group
No one understands your situation better than another caregiver. Look for support groups related to your loved one’s illness, if possible. Meeting with others whose loved one presents similarly to your loved one will allow you to socialise in public without having to explain or excuse behaviours and increase your confidence to explore new places/experiences. Your local council may have a full listing or look online. Or consider joining an online community, where you can connect with others, ask questions, vent frustrations, and share ideas.
Tip 7: Use Timers and Reminders
Technology can be a caregiver’s best friend. Buy pill boxes that sound an alarm when it’s time for the next dose, or try a smart phone app or an online medicine reminder. They can send an automated text or phone call to you or your loved one when it’s time for their medication. Pill organizers are a low-tech option that allow you to portion pills in little drawers by day, meal, or hour.
Tip 8: Get an Emergency Alert Device
Consider an electronic “help” button for when you can’t be there. It’s called a personal alarm, and it’s worn like a pin or a necklace. Most connect to the phone system. Some work like a walkie-talkie, so the wearer can talk to an emergency operator at any time. Some will notify a family member or call 000, depending on your preference. You will need to pay a monthly fee for the service.
Tip 9: Set Up Cameras and Sensors
To chat with your loved one or keep tabs when you can’t be there, consider setting up a webcam — a video camera connected to the Internet. Video chat applications can also help to involve distant family members in care decisions. If your loved one might wander away, you can install sensors that alert you when a door is opened.
Tip 10: Let Animals Assist
Consider bringing a well-trained cat or dog in for a visit. Spending time with an animal can be incredibly soothing to people who are sick or confined to home. Pets can lower blood pressure, reduce stress — even make elderly people more alert. And seeing a loved one “perk up” can make you, the caregiver, happier, too.
Tip 11: Turn On Some Music
Music and art can spark fun shared moments for you and the person you’re caring for. Familiar music can bring back memories and may lead to clapping or dancing. Art projects should be simple and safe but not too child-like. Painting or making a collage from magazines are two good options. And listening to music or working on an art project can be a great stress reliever for you, too.
Tip 12: Cope With Sundowning
People with dementia can become confused or agitated in the evening, so plan accordingly to minimize your own stress. Plan activities early in the day, and serve an early dinner. Turn the lights up in the evening. Check with a doctor about any physical or sleep problems that may be contributing to the sundowning effect.
Tip 13: Make It a Team Effort
Hold regular “family meetings” to discuss the latest medical news, daily caregiving needs, financial concerns, and your need for support. These meetings should include everyone who might be involved in caring for your loved one, including paid caregivers. Connect distant family members through a speaker phone or online video chat. Follow up with a written agreement and a calendar of tasks.
Tip 14: Draw on Workplace Support
Under the law, a full-time or part-time worker builds up their right to paid leave throughout the course of the year. By the end of the first year, a full-time worker will build up 10 days of paid personal carer’s leave. A part-time workers get a proportion of this based on how many hours they work each week. Paid personal carers leave includes personal sick leave and leave required to care for a family member.
Contact the Fair Work Infoline on 13 13 94 to check out your rights to paid leave. So ensure you are taking care of yourself, this will allow you to be a happier, better carer.